It's odd how many things I read on a daily basis in the blog-o-sphere leaves me shaking my head in agreement each and every day. Some many of us parents of special needs kids experience the same stressors, trauma, fears and experiences, sometimes during the same evening, month or grade level. I love feeling so very un-alone in this process. Thanks ladies . . .
Recently Jo posted about Little Man and having a scare about his bone marrow suppression due to some of his psychotropic meds and that very day we received the same call. Doc, "We need you to come in and talk to you about Dustin's WBC and neutrophil counts. I'm concerned about their low numbers". We were told that they were on the low end of normal and to keep an eye out for infection, fever or sore throat over the weekend. Much like us Jo freaked out knowing this information could be the bearer of a medication change and would "jack up" all progress made recently just before school starts. She received word that his counts from the bloodwork Monday were normal. Dustin had bloodwork Monday as well and are definitely on the rise. Amazing news for both boys!
I have been reading recently on Yondalla's blog and on Foster A and E's blog (which is private for hopefully only a while longer) about experiencing first even with older children that are in our homes as fosters or adoptees in my case. Yondalla's foster son rode a plane alone for the first time and FA's child also accomplished something alone for the first time. Last night I got a call from Marla inviting Dustin to go to a movie with her and Maizie. I cried. My boy got to do something NORMAL. And better yet it was with a child who WANTED his company and CHOSE him as a friend not a child of a friend who was being "forced" to accept him. How nice! How special! How normal! Our children's firsts are amazing whether hey happen at 6 months, 12 months or 13 years!
When Dustin came home last night we received a piece of mail that Marla had warned me about. I scanned it because it was so darn cute. I feel a little guilty though because since Dustin cannot read he asked me what it said, and I lied (bad mommy). I thought I could bring myself to tell him what it said, but when push came to shove I didn't. I said something like "Hey Dustin, thanks for being a good friend". I'm not sure why I felt the need to lie, it really doesn't bother me that she had a crush on him, I found it sweet and adorable, but I got a lump in my throat and just couldn't say it! LOL I think maybe too much normalcy at a time is bad for the heart of a mom! Tee Hee. I think I may have to come clean with him soon as she is visiting our house this weekend. I can just see him now, he will wrinkle his nose and say "huh?" and then blush incredibly badly! That just might be worth fighting the lump in the throat!
One year since he's been gone.
1 week ago