posting from my phone apparently doesn't work! LOL
I am without internet at the house due to a blown booster and my lovely friends at com.cast could not get here for FOUR days! I think I have lost my mind. What did we do before the World Wide Web??
Anyhoo, I am at work and I am stopping by to holler from the rooftops!!! We got approved for services for Dustin! We applied for a program last week that takes the slack from the BDD waiver program (not sure if that is just an Indiana thing?!) that we have been waitlisted for 7 years with. It offers some in home services, some flexible spending, RESPITE care (woot!) and some care similar to the PCA program that I hear about from all of my Minnesota buddies.
There was some concern that we would not qualify since they require hospitalizations in the recent past, but he did score the best possible (worst?!) on his assessment at the highest level so we did slide in! I have never been so thankful to have horrible behaviors to deal with in my whole life! He should qualify for the largest amount of services that they offer if we are wanting him to have them. We get to pick and choose what we would like to take advantage of and what we think would not work with him.
You have no idea how thrilled I am. I feel like we have been floating around forever with nothing to reinforce us for so long. I really hope this helps! I really hope it ends up being a beneficial program not only for our peace of mind, but something Dustin will enjoy!
I'm so happy to hear this! Being from MN with pca services I can tell you it has saved my life. When I didn't have services about 2 yrs ago I ended up in a psych ward myself with depression and exhaustion. So it literally did save my life. Once Dustin is adjusted to the pca he will love it. Don't be surprised if the other kiddos want their own pca too! I hear it often how "it's not fair"! ha ha yah you!!!
ReplyDeleteWooo, wooo! Good for you! Now I need something like this in NY.
ReplyDeleteWow...that's awsome...I'm so glad you'll have at least this bit of relief coming your way.
ReplyDeleteHallelujah!
ReplyDeleteThese services are necessary, not just nice to have. Our children and families need a fighting chance to try to avoid the much more expensive services (and less effective, therapeutically speaking) that loom down the road.
Good for you. Good for your son. ~Kari